Over the past 21 months, I have had the eye opening experience of being a parent to a child with a chronic medical condition. We have spent vast amounts of time as hospital inpatients, and as her voice I quickly learned how to advocate, speak up, protect and cocoon her from the potentially traumatic effects of being a “hospital baby.”
Together we have endured countless cannula placements, blood tests, surgeries, x rays, ultrasounds, lumber punctures and so much more. But through it all I have done my best to protect her, and though she has had to go through some very horrible experiences, she is (thankfully) always quick to bounce back.
In this article I want to share the lessons I have learned during the past two years, lessons which have saved our family and our daughter from unnecessary trauma and helped to give her the support she needed to come out of each hospital admission relatively untraumatised. These lessons can be transferred into any stressful situation, not just in a hospital environment, but whenever a child has to go through something which could potentially be very upsetting.